Sickle Cell Warriors

Posts From Sickle Cell Warrior

    Sickle Cell Disease Handbook by APHON

Sickle Cell Disease Handbook by APHON

Sickle Cell Disease Handbook for Patients & Families The Association of Pediatric Hematology/Oncology Nurses has developed a resource for sickle disease patients and their families. The Sickle Cell Disease Handbook provides an overview for patients and their families on SCD. Each handbook is written at the 6th grade level allowing parents to

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    Sickle Cell Drug Therapeutics Conference LiveStream Sept. 14, 2017

Sickle Cell Drug Therapeutics Conference LiveStream Sept. 14, 2017

Sickle Cell Warriors has exclusively partnered with Global Blood Therapeutics (GBT) to livestream the Annual Sickle Cell Disease Therapeutics Conference from New York City on September 14 at https://www.facebook.com/SickleCellWarriors/. This is the first conference that will be live streamed on our Facebook page in its entirety Through the livestream, you will

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    Tips to Prevent Sickle Cell Crisis in the Summer

Tips to Prevent Sickle Cell Crisis in the Summer

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    Love Overcomes Sickle Cell: Meet Linda & Steve

Love Overcomes Sickle Cell: Meet Linda & Steve

I’m not a warrior but I’m a warrior wife, so I’ve been on the other side of your story. I hope that this gives you hope and courage to face whatever relationship hurdles you are going through. My story is almost something out of a Nigerian movie, but this is

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    Life Insurance with Sickle Cell

Life Insurance with Sickle Cell

It’s been very hard to obtain life insurance with sickle cell disease. Here are a few tips that may get your application approved.

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    Stop Mistreatment of Sickle Cell Patients in the Emergency Room

Stop Mistreatment of Sickle Cell Patients in the Emergency Room

Question: G. Jones says, "What can we do to stop mistreatment of SCD patents in Hospital and being lable as Drug seekers. Like our pain is not real. We are not just looking for Dugs. Why wood anyone get out their bed and go to hospital at 3am, if their pain
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    Meet KiAnna – Daughter, Wife, Warrior

Meet KiAnna – Daughter, Wife, Warrior

Hi, my name is KiAnna and I’m 24 going on 25 this spring. I’m adopted and the oldest of 11. 5 adopted, 5 biological to my adopted parents, and 2 in-laws! Recently married to my best friend and love Kyle! I was born to a very young couple. My birth

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    You Can Make a Difference!

You Can Make a Difference!

Hello everyone! Sickle Cell Warriors, we often hear complaints that there is not enough being done for Sickle Cell Disease. I’m extremely disappointed to find out that out of over 100,000 people with SCD in the US and millions abroad, only a few have completed this survey. How can we

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    New Warrior Channel: Lady Bunkumi & Sickle Cell

New Warrior Channel: Lady Bunkumi & Sickle Cell

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    Tips on Going through Nursing School with Sickle Cell

Tips on Going through Nursing School with Sickle Cell

Breonna asks, “Where are all the Warriors in nursing school? I am about to begin my second semester of LPN school and I have two children. What are you doing to stay healthy, avoid stress and pain, and still keep your grades up?” Many of us enter the nursing profession,

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    5 Tips for Managing Avascular Necrosis in Sickle Cell

5 Tips for Managing Avascular Necrosis in Sickle Cell

Many of us with sickle cell suffer from avascular necrosis of the hip, where the bone is damaged by sickle cell blockage, leading to a prolonged limp, pain on that side of the hip and leg, and often to walk with a cane if it gets bad. You don’t have

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Get Well Wednesday: RN Tosin Ola Answers Your Sickle Cell Questions

Hey Warrior Fam, Check out our Founder, Tosin Ola’s interview with the Tom Joyner radio show. Repping for Sickle Cell all the time. Awareness is integral and we all must do our part. Tosin Ola, BSN, RN knows firsthand the challenges of living with sickle-cell disease. The practicing registered nurse,

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Happy New Year! 

Wishing you all the blessings and joy this year. May you find the strength to live your very best life, and keep on fighting until there is a universal cure or multimodal treatment for us all. Love, hugs, and stay blessed. 

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    Isata Lakoh – The Most Important Day

Isata Lakoh – The Most Important Day

The most important day of my life is the day my parents explained the essence of the pain I have gone through majority of my life. Around the age of seven, I was slowly being informed about what made me different from the rest. The very beginning of any child’s

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    Research Study Request: Chronic Pain in Sickle Cell Disease

Research Study Request: Chronic Pain in Sickle Cell Disease

From time to time, we get requests from researchers who would like members of the sickle cell community to participate in various types of research. This inquiry has been pre-screened, and your info will be kept confidential and private. Please use your own judgement, and only proceed if you fee

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