Hi, my name is KiAnna and I’m 24 going on 25 this spring. I’m adopted and the oldest of 11. 5 adopted, 5 biological to my adopted parents, and 2 in-laws! Recently married to my best friend and love Kyle! I was born to a very young couple. My birth
Hello everyone! Sickle Cell Warriors, we often hear complaints that there is not enough being done for Sickle Cell Disease. I’m extremely disappointed to find out that out of over 100,000 people with SCD in the US and millions abroad, only a few have completed this survey. How can we
Breonna asks, “Where are all the Warriors in nursing school? I am about to begin my second semester of LPN school and I have two children. What are you doing to stay healthy, avoid stress and pain, and still keep your grades up?” Many of us enter the nursing profession,
Many of us with sickle cell suffer from avascular necrosis of the hip, where the bone is damaged by sickle cell blockage, leading to a prolonged limp, pain on that side of the hip and leg, and often to walk with a cane if it gets bad. You don’t have
Hey Warrior Fam, Check out our Founder, Tosin Ola’s interview with the Tom Joyner radio show. Repping for Sickle Cell all the time. Awareness is integral and we all must do our part. Tosin Ola, BSN, RN knows firsthand the challenges of living with sickle-cell disease. The practicing registered nurse,
Wishing you all the blessings and joy this year. May you find the strength to live your very best life, and keep on fighting until there is a universal cure or multimodal treatment for us all. Love, hugs, and stay blessed.
The most important day of my life is the day my parents explained the essence of the pain I have gone through majority of my life. Around the age of seven, I was slowly being informed about what made me different from the rest. The very beginning of any child’s
From time to time, we get requests from researchers who would like members of the sickle cell community to participate in various types of research. This inquiry has been pre-screened, and your info will be kept confidential and private. Please use your own judgement, and only proceed if you fee
Here is another excellent resource dedicated to sickle cell disease. Gary Gibson, President of the Martin Center Sickle Cell Initiative has been hosting this amazing show for the last few months. Tune in every Tuesday, 1pm PST/4pm EST to get your latest news and happenings in the sickle cell community,
This recipe has all the earmarks of being perfect for those with sickle cell; great root vegetables, easy to prepare, and rich in thiocyanate
One of our esteemed Warriors in the Spotlight, Heather Avant was featured on the Dr. Phil show on December 17, 2015. She talks about how it is to live with sickle cell disease, what the pain feels like, going through a VOC, and the stigma that we often face living with
Breaking news from all around the world in #sicklecell disease. Stem Cell Transplant Adult Successful stem cell transplant of 12 adults with sibling matches (half-match) at University of Illinois Hospital & Health Sciences, Chicago. 92% cure rate, 1 reversal (that patient did not follow protocol post-transplant). Great news! Read more
With sickle cell, carrots and potatoes are supposed to be our staples. Here is a recipe that uses them all flawlessly combined with some protein thrown in.