Someone left this information in a comment and I just wanted some feedback.
There is a relatively new treatment for sickle cell being produced in Nigeria by an American company called Nicosan. It is based on traditional Nigerian plant based medicinal practices for the treatment of sickle cell disease.
It has been tested through phase IIb clinical trials and found to be highly efficacious. Phase III trials have yet to be completed however it was approved for sale in Nigeria based on phase IIb and toxicity studies which showed it to be completely non-toxic.
It is available in Nigeria without prescription and the cost is about $23/month. If you have a contact in Nigeria who can get a supply and send it to the U.S. that is possible. If you physician is aggressive enough there are special dispensations where unapproved drugs can be imported to the U.S. on a compassionate usage basis.
Here is a link to the company and product website. Please read the clinical trial info.
I’m always skeptical about drugs that claim to ‘cure’ sickle cell but at the same time I don’t want my skepticism to over-ride a good treatment. So I’m putting this out there for your input. Especially to my peeps in Nigeria. If you’ve heard about Nicosan, have used it or know someone that has, please let me know.
This isn’t an endorsement. It’s just something I’ve stumbled upon so if you want to try it out, use your own judgment. As for me, I’ll just stick to Arginine for right now.