Sickle Cell Warriors


 Breaking News
  • VOICE Crisis Alert App VOICE Crisis Alert App The VOICE Crisis Alert app is the first national app created for patients and families with sickle cell disease. The app stores all its data locally...
  • World Sickle Cell Day 2018 Hello Warrior Family! Don’t forget, today, Tuesday June 19th is World Sickle Cell Day. This was specially designated by the World Health Organization in 2009 to improve the education, research, and...
  • SCD Adult Support Groups in Southern California California Warriors, great news! Cayenne Wellness is now hosting monthly support group meetings in Fresno, San Diego, Los Angles, Loma Linda, and Antelope Valley. You get to meet others with...
  • Tracing sickle cell back to one child, 7,300 years ago Tracing sickle cell back to one child, 7,300 years ago Check out this amazing article by Nalina Eggert of BBC News for a journey of SCD from 7,300 years ago.  The...
  • Meet Brittany: Caregiver, poet, and writer This week’s warrior in the spotlight is Brittany Hightower.  Brittany is a caregiver who is beautiful, intelligent, and passionate about poetry. And oh yeah, she has sickle cell. How old...

Alternative Therapies

Okay, let’s talk Alternative therapies. I had a list HERE on recommended alternative herbal remedies for sickle cell. Well almost a year has passed by since then, and I’ve been told and have remembered a few more.

  • Carao fruit: One of my Brazilian readers mentioned this. Apparently, she has been giving carao to her daughter who is 3, and her H&H goes up a couple of points even if she’s in the middle of a crises. It’s a tropical origin (South American countries), so if you aren’t close to the Equator you might not have access to it. Here is a site with a picture of what carao looks like (apparently it smells weird). I haven’t taken it, but I wouldn’t mind hearing another testimonial from someone that has.
  • Cellfood: I used to take this in Nigeria, it was shipped to me from the US. You put a few drops of this liquid into an 8. oz glass of water/juice and sip on it all day long. “CELLFOOD is a proprietary ionic fomula containing dissolved oxygen, electrolytes, 78 ionic minerals, 34 enzymes and 17 amino acids— which provides an unsurpassed oxygenating source, and nutritional delivery system, to every cell of the body. CELLFOOD’s unique structure oxygenates and feeds the cells— cleaning and ‘tuning up’ our body’s systems all day long.” I fell off the bandwagon with cellfood once I had a crises but you can look at information on it HERE.
  • L Arginine
  • Dioscovite: This contains high amounts of thiocynate, which is mainly the nutrients found in African Yam. Read up more about it HERE.
  • Omega 3/Fatty Acids
  • Tahitian Noni Juice: Apparently it helps to boost your immune system and reduce pain. This is a statement from another sickle cell warrior..I’ve personally never used it before. Check it out HERE.
  • And don’t forget the old list HERE

Hope you are all doing well and enjoying the beginning of the summer! Happy Memorial day weekend.

About Author

Sickle Cell Warrior

Sickle Cell Warrior

Tosin is dedicated to perpetuating healthy and positive messages about sickle cell. Although sickle cell is a subject often taboo in the communities this condition is most prevalent, Tosin's message is that sickle cell is not something to be ashamed of and you can live a rich and fulfilling life with sickle cell. Sickle cell warriors are the most amazing people in the world, with a great fortitude for compassion, willpower and strength.

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1 Comment

  1. Zul
    Zul January 29, 05:38

    I use carao and its true the haemoglobin is higher even on crises it does smell bad but it works! gives him energy and his lips and nails arent as pale as they were!its an amaizing fruit!

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