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FDA Public Meeting – Patient Perspectives on the Impact of Rare Diseases

Registration Open: FDA Public Meeting - Patient Perspectives on the Impact of Rare Diseases: Bridging the Commonalities On Rare Disease Day, FDA announced the Agency will host...

SC and CBS 60 Minutes

On Sunday, March 10 at 7:00 p.m. ET, NIH Director Dr. Francis Collins and NIH senior investigator Dr. John Tisdale will be part of a CBS 60 Minutes segment on...

Progress in Gene-Editing Therapy

Exciting news! CRISPR Therapeutics and Vertex Announce Progress in Clinical Development Programs for the Investigational CRISPR/Cas9 Gene-Editing Therapy CTX001. They have dosed the first...

SCW Video: Pain From A Shower

https://www.youtube.com/watch?v=gmnWqt_m_Sk&t=14s

ASGCT Patient Education on Blood Disorders

What is this? The American Society of Gene & Cell Therapy (ASGCT) is proud to announce the first release of the Society's Patient Education program,...

Manual For Life by Paulo Andre Chenso

PAULO ANDRÉ CHENSO is a doctor and professor in London. He created a "MANUAL FOR LIFE". IT'S WORTH A READ AND TO PUT IN PRACTICE. IN THE...

Warrior University Online Series

Dear Sickle Cell Community, Join a 5-week webinar series on the topic “Blood Transfusions: What You Need to Know and Do”. The interactive series will include in-depth...

Holistic Health and Sickle Cell Disease Webinar

Holistic Health and Sickle Cell Disease: A focus on Mental and Behavioral Health Thursday, February 28, 2019 1:00 - 2:15 pm EST Register Here Sickle cell disease (SCD)...

Heart’s Truth Facebook Live 2/26

Join The Heart Truth’s Facebook Live at noon EST on Tuesday, February 26 to see how heart healthy cooking can be fun, especially when you do...

SCW Video: Project #SickleCell Day Three

https://www.youtube.com/watch?v=O7k4hKNgE0g
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