Sickle Cell Warriors


 Breaking News
  • VOICE Crisis Alert App VOICE Crisis Alert App The VOICE Crisis Alert app is the first national app created for patients and families with sickle cell disease. The app stores all its data locally...
  • World Sickle Cell Day 2018 Hello Warrior Family! Don’t forget, today, Tuesday June 19th is World Sickle Cell Day. This was specially designated by the World Health Organization in 2009 to improve the education, research, and...
  • SCD Adult Support Groups in Southern California California Warriors, great news! Cayenne Wellness is now hosting monthly support group meetings in Fresno, San Diego, Los Angles, Loma Linda, and Antelope Valley. You get to meet others with...
  • Tracing sickle cell back to one child, 7,300 years ago Tracing sickle cell back to one child, 7,300 years ago Check out this amazing article by Nalina Eggert of BBC News for a journey of SCD from 7,300 years ago.  The...
  • Meet Brittany: Caregiver, poet, and writer This week’s warrior in the spotlight is Brittany Hightower.  Brittany is a caregiver who is beautiful, intelligent, and passionate about poetry. And oh yeah, she has sickle cell. How old...

5 Tips for Managing Avascular Necrosis in Sickle Cell

5 Tips for Managing Avascular Necrosis in Sickle Cell

Many of us with sickle cell suffer from avascular necrosis of the hip, where the bone is damaged by sickle cell blockage, leading to a prolonged limp, pain on that side of the hip and leg, and often to walk with a cane if it gets bad. You don’t have to suffer in silence. This is a treatable issue. One of our readers posted a response that we’re sharing because it succintly details the treatment plan.

I am young (in my early 20s) and I had a hip replacement 1.5 years ago. I had AVN in my left hip which progressively got worse over the course of 8 years to the point where I could barely walk a few meters without wanting to cry my eyes out in pain. I was in constant pain all day long. So I got to the point where I demanded having the surgery. 

1.You can try the decompression thing

2. You can try injections inserted in the joints to temporarily replace the cartilage (keep in mind this procedure is usually for Osteoarthritis not AVN but it might help – speak with your physician).

3. Do sports with low physical contact like swimming and biking to keep your mobility. [Also do physical therapy before surgery to strengthen your posture, joints, and muscles. This will reduce your recovery time after surgery.]

4. Ask about getting a bone graft, if your AVN isn’t too bad they could do a minor surgery to preserve the bone as is (I’m not sure if this is a temporary solution or if it’s good for life – speak to your physician)

5. Don’t believe them when they said you’re too young. Surgery is scary and the recovery process will take a few months with physio (physical therapy -PT) but it’s better than living in constant pain. Technology is so much better these days, your replacement will last you at least 20 years minimum if you don’t do any hardcore contact sports like running, soccer, etc…

All the best, xo
By Kellie Robinson

5 Tips for Managing Avascular Necrosis in Sickle Cell - overview

Summary: The top 5 things you can try for avascular necrosis of the hip.


About Author

Sickle Cell Warrior

Sickle Cell Warrior

Tosin is dedicated to perpetuating healthy and positive messages about sickle cell. Although sickle cell is a subject often taboo in the communities this condition is most prevalent, Tosin's message is that sickle cell is not something to be ashamed of and you can live a rich and fulfilling life with sickle cell. Sickle cell warriors are the most amazing people in the world, with a great fortitude for compassion, willpower and strength.

Related Articles


  1. Dr. Tariq Sawandi. MS, Phd
    Dr. Tariq Sawandi. MS, Phd September 22, 16:24

    There is a prevalent opinion by African Americans who suffer from Sickle Cell Anemia that western medicine is the only treatment for this chronic disease. African Medical principles have successfully controlled Sickle Cell Anemia for thousands of years with dietary therapies. Contact Dr. Tariq Sawandi’s Holistic Health Center to get the facts and an African Holistic diagnosis.

  2. spark
    spark January 21, 10:43

    I did a hip replacement two years ago,and here I am in excruciating pains again
    Am losing it

  3. Juice
    Juice March 17, 02:43

    Has anyone dealt with sickle cell leg ulcers at the ankles and was able to avoid or treat them quickly, because this is one of the side affects of SCD

  4. Israel
    Israel July 05, 17:07

    You talk about the importance of technology and surgery, but in Africa it is not common to get or easy to afford medical care. How then can we help ourselves?

  5. Denise
    Denise July 26, 11:02

    I have sickle cell and caught AVN in my left shoulder. I had to have a whole shoulder replacement. I still don’t have full motion in my arm as I can’t lift my arm at all. What would be a good way to get movement back in it?

Write a Comment

This site uses Akismet to reduce spam. Learn how your comment data is processed.


Support awareness & education for SCD

WordPress › Error

Error! Donation amount must be a numeric value.