a community of those living, loving and surviving Sickle Cell Disease
Meet Jazzlind: Daughter, Student, Girlfriend, Warrior
Meet Jazzlind: Daughter, Student, Girlfriend,…
Posted 59 days ago

This week's warrior is Jazzlind. She's a 15 year old full of spice and life, and she has candidly opened up about her experiences with sickle cell.

Meet Jazzlind: Daughter, Student, Girlfriend,…
Meet Akimie: Artist, Runway Model, Warrior
Meet Akimie: Artist, Runway Model, Warrior
Posted 86 days ago

Ever wondered if you could be a working model in NY with sickle cell? If Akimie can do it, so can you!

Meet Akimie: Artist, Runway Model, Warrior
Success Begins with You!
Success Begins with You!
Posted 89 days ago

Tosin explains how you can have a successful and happy life with sickle cell. Once we shift our mentality, we all can achieve all our goals and dreams.

Success Begins with You!
Meet Clarissa: The Warrior Behind of HeartofGold.org
Meet Clarissa: The Warrior Behind of HeartofG…
Posted 89 days ago

The creator of the Heart of Gold foundation shares her inspirational journey with sickle cell below. Read on...

Meet Clarissa: The Warrior Behind of HeartofG…
Meet Kandis: Mom, Nurse and Warrior
Meet Kandis: Mom, Nurse and Warrior
Posted 90 days ago

Meet Kandis, an intrepid and determined young lady. Even with AVN and sickle cell, she has accomplished all her dreams and strives to inspire others.

Meet Kandis: Mom, Nurse and Warrior
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Tosin's Corner

Checking In…

Checking In…

Hello everyone, It’s been a few months since I posted on here. First of all I need to apologize for the silence. I know that it may have been very frustrating to come here with no new updates. Since October, I’ve faced alot of challenges [continue reading...]

Setting Goals

Setting Goals

For those of you who haven't zeroed in on your purpose in life, this is a great exercise when you have the time. Often we have 'mental lists', but an actual physical list gives you something concrete, something that you can check off, and something [continue reading...]

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Google Friend Connect

Going to School with Sickle Cell

One thing that I’ve learned with having this ailment is that I can’t let it scare me or change anything about the way I want to live my life. I’m very determined and want to achieve all my dreams, goals and aspirations. I won’t let anything stop me from attaining my full potential—and schooling was always on my list for something that was important.

There are alot of resources especially in the US for people going to school with a disease. Guess what—you are qualified as a handicapped person with sickle cell. This means that your school, teachers, administration and classmates can’t discriminate on you based on your illness. Also, they can’t flunk you out based on it–in fact, they are supposed to help you achieve your goals.

Now I’m not saying sit back and waltz through school without lifting a finger—hells no! But certain rules and expectations can be bent for you, as long as you have a documented medical history. The first thing you need to do is register with the Health Department at your school. This is that little building around the clinic where no one ever goes to unless they need condoms.

They are supposed to cover assistance for handicapped students. You let them know you have SCD, provide your doctor’s statement and register for the service. When you fall sick, some schools have it that you can just call the Health Department and they will provide you with excuse slips or contact your teachers.

In addition, you have got to be proactive and stay on top of things. I know that I fall sick every 3-4 months like clockwork, so my homework is always done in advance, I read the syllabus and start drafts on all my papers while I’m healthy so that I have less to stress about when I’m sick. My friends also brought my assignments to me in the hospital and I was hooked up to painkillers and IV fluids studying for tests and completing homework.

It takes alot of guts and determination to keep ahead but you know that you have that cushion for when you do fall sick. And it’s good student practice anyway.

Remember, you don’t want a pity party thrown on your behalf. But if all you need are few extra days to finish a paper that you weren’t able to get to, because you were sick and in the hospital, then by all means, go ahead and let your teachers know. Most people are sympathetic and will get on board with helping you out.

Another perk is that you are probably eligible for a bunch of scholarships that “healthy” people don’t get. You can apply for all those Blood Disorder, Cancer, Sickle Cell and Handicapped scholarship. Plus your life story is a built in statement of purpose and might make you nail that scholarship:)

So go ahead—register, go to school and get that degree. I’ve known people with sickle cell becoming nurses, doctors, lawyers, engineers and bankers. You can do it, the sky is truly the limit, set your goals and achieve them. The only thing stopping you is yourself. Stop being a roadblock to your success and your future.

Just.Do.It!

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Highlighted SC Events

  • Worldwide: UN Sickle Cell Awareness Day!! on 06/19/2012
    in 31 days and 10:19 hours.

Featured Warrior

Interview with a Medical Doctor with Sickle Cell Disease

Interview with a Medical Doctor with Sickle Cell Disease

Ever wondered if you could be a doctor with sickle cell? Well you can follow that dream. Dr. Y. explains to us how she went through medical school and became a physician. [continue reading...]

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