Sickle Cell Warriors!!! We need your help! Please read the letter below and send your comment into the FDA. We have until February 16th to respond as a community. The deadline is coming up quick! The Pediatric Rare Disease Voucher Program was created for sickle cell disease, however, due to
- Help Sickle Cell Obtain the Rare Disease Pediatric Voucher
- SC Gathering & Educational Symposium Appreciation
- Meet Tiara Williams: College Student, Daughter, Champion, Warrior!
- Sickle Cell Families Need Direct Support Services
- Recipe: Red Bean & Chickpea Soup
- Meet Tristan Lee: Fashion Designer, Model, Poet, Warrior!
WOOHOO!!!! We made it! The 2014 Sickle Cell Warriors Gathering is now officially over! Thank you so much for everyone who has attended and made this experience phenomenal. Lakiea & I hope that you found it extremely informative, educational, inspiring, and supportive. There are so many people to thank, so
Today we will be speaking with Tiara Williams, a 21 year old from Chicago, who is a dedicated student and warrior. Her goal is to do Social Work and social services for the elderly, and despite facing some obstacles due to having Sickle Cell, Tiara continues to press
Being the parents of a Sickle Cell Warrior (SCW), we know giving up is never an option. Even when we don’t receive the needed support to get through each crisis, we can never lose hope or our smile. Your child survives merely through the pain from your strength/smile. But who
Hello fellow warriors! This recipe was inspired by a bean salad, which consisted of kidney beans, corn, and chickpeas. I was thinking of how to have a delicious, Thiocyanate filled, healthy meal, and I came up with this. The first time I made it, it came out amazing! It’s pretty
In the last few weeks, several warriors have told me that they had other health problems besides sickle cell that was not addressed or diagnosed quickly by their physician because at first, the doctor chalked it up to being a ‘sickle cell’ complaint.
Explore the latest health trend, health pulling. Our resident Health & Wellness expert April answers your questions.
ElleJanae explains how to work together with school administrators and the teacher to get your 504B plan instituted and executed for your child.
As a parent, what you say matters. ElleJanae shares a secret to keeping her well of faith full.
Today, we are interviewing Tamara Raymond, who is a Client Relationship Manager and freelance Brand Enthusiast! Tamara is a university graduate, and her determination to succeed is taking her to the top. She is intelligent, brave, and determined, and in no way allows sickle cell to keep her from doing
A poem written by Vicki Glarum, a mother of a child with sickle cell disease. Envisioning a world without sickle cell…
This week’s organization in the spotlight is the Have A Heart for Sickle Anemia Foundation. Established in 1990 by the late Linda Collins it has continued on its vision to be a strong advocate and make a difference in improving the quality of life for those affected by sickle cell
If your child has had issues or trouble taking medications, this post is for you. ElleJenae gives us the sweet remedy that she learned from her mom which gets her baby girl to take her meds every single time.
Elle Jenae shares a favorite family recipe that is healthy, delicious, and packed with nutrients for her growing family. Join the ZFamily at dinner table and bon appetite!
Iron overload is one of the complications that many sickle cell warriors face. Did you know there was a calculation to iron overload? Our resident nerd, Dr. Lakiea Bailey breaks down the math.
This is the finale of the interview with Raheem C, the sickle cell patient who underwent a stem cell transplant and is now sickle cell free! Congratulations Raheem! Live free and be happy!
As a caregiver of a child or loved one with sickle cell, you are often the rock. Elle Jenae gives some tips on how to ensure that your emotional reserves remain renewed.
Sometimes you end up on a journey that you have no idea why you are traveling it. As a
Is it possible to find love with sickle cell? It surely is! Follow Kena as she shares her story of heartbreak, romance, finding love and happily ever after.
When dating with sickle cell, many warriors are stuck in a quandary. Do you tell your significant other that you have this chronic medical condition…or do you keep the secret as best as you can? SCW explores both sides of the coin…
2014 Sickle Cell Community Gathering & Education Symposium PROGRAM AGENDA Please note that this schedule is a guideline, but times/rooms/and
Hey Warrior Family! We hope you are doing well. Sickle Cell Warriors, Inc. is planning the 2nd Annual Sickle Cell