- September 2011 News Roundup
- Mid-November 2011 News RoundupPosted 76 days ago
So much has happened since our last issue. Great strides in research with mice--2 new studies!! More warriors cured with transplants, and amazing strides taken in sickle cell research and…
- Meet Parnel: Husband, father, diligent advocate, passionate educator, leader and Warrior!
- Meet Parnel: Husband, Father, Advocate, Educa…Posted 127 days ago
It is my pleasure to introduce Parnel Abraham, husband, father, advocate and leader in the sickle cell community. He is a true inspiration, and you can learn ALOT from this…
- Back to School with Sickle Cell
- Going to College with Sickle CellPosted 131 days ago
For those going off to college this year....here are some steps to help guide you through another semester.
- Meet Clayton: Child Protective Services Investigator, husband, father and warrior.
- Meet Clayton: CPS Investigator, Husband, Fat…Posted 131 days ago
This week's warrior is a father, husband and advocate for at-risk youth. Clayton doesn't let anything slow him down. Read his inspiring story next...
- Filing a Complaint in the Hospital
- Filing a Complaint in the HospitalPosted 156 days ago
Once in a while, you might get treated with less-than compassionate care. Get the 4-1-1 on how to file a complaint and make sure it doesn't happen to you (or…
Warriors in the Spotlight
Meet Parnel: Husband, Father, Advocate, Educator, Warrior!
It is my pleasure to introduce Parnel Abraham, husband, father, advocate and leader in the sickle cell community. He is a true inspiration, and you can learn ALOT from this interview. [more...]
SC News and Research
Mid-November 2011 News Roundup
So much has happened since our last issue. Great strides in research with mice--2 new studies!! More warriors cured with transplants, and amazing strides taken in sickle cell research and care all over the world. Read on... [more...]
Newest Features
Going to College with Sickle Cell
Filing a Complaint in the Hospital
Tosin's Corner
Setting Goals
For those of you who haven't zeroed in on your purpose in life, this is a great exercise when you have the time. Often we have 'mental lists', but an actual physical list gives you something [more...]
May 2011: Open Letter to the Community
Hey everyone! I just wanted to say hello to all the lurkers (we see you;) and all the new members! It’s been a while since I’ve sent out an email blast, but there are a few things that [more...]
Nutrition & Recipes
Roasted Beets—Yum!
As you are well aware, Beets are one of the foods rich in thiocyanate, a protein that helps prevents cells from clumping together. Beets aren't my favorite thing to eat, but this recipe has me going [more...]Love and Sex
More Sex and Sickle Cell
Here are some tips to help you have amazing sexual experiences in and out of the bedroom without triggering a sickle cell crisis afterwards... [more...]
Living with Sickle Cell
Part 2: Paying for Medications
Sickle cell medications do not come cheap. With copays of 15-30% on prescriptions, your out of pocket costs can grow drastically. If you are on a fixed income, or don't make much, it can get hard. [more...]
Dealing with Medical Bills and Insurance
Medical bills and insurance often is a roadblock that plague many sickle cell warriors. Here are 4 plans that can get you out of the financial mire and on more stable ground. [more...]
Exercising with Sickle Cell
It is quite possible to get the body of your dreams even with sickle cell. Don't use our condition as an excuse to sit at home and get fat. Here are a few tips to help you get started, and prevent a [more...]
Tips for Going to the Emergency Room with Sickle Cell
For many of us with sickle cell, going to the emergency room is one of the worst parts of having the disease. Here are a few tips to help you make the ER visit less stressful and more successful. [more...]
Complications of Sickle Cell
Sickle Cell and Overcoming Addiction
Part 2 of this series gives you tips and strategies to overcome addiction. It isn't easy, but it's completely achievable. [more...]
Sickle Cell and Drug Addiction: Definitions
The first part of this 3 part series deals with the definitions for addiction, tolerance, physical dependence, and pseudo-addiction [more...]
Yellow Eyes and Sickle Cell
Learn more about jaundice, and why the eyes of sickle cell warriors are often yellow. [more...]
Renal Papillary Necrosis and Sickle Cell
Renal papillary necrosis is a sickle cell complication that we need to watch out for. Read on to learn more... [more...]
Videos
For Teachers: Sickle Cell Disease at School
For educators, parents and children with sickle cell disease, this video is a good point of education on the challenges faced by children and adults with sickle cell disease. [more...]
Sports Screening for SC Trait
Is sports screening for sickle cell trait a step in the right direction? Check out this video, and let us know your thoughts, either in the comments section or make/tag a video. [more...]
Flight Details
Get the gist of Tosin's airplane trip to Nigeria here. [more...]
My First Crises
Story of my first crises. A lovely family day at the beach, went awry with sickle cell…and so it began. Share your sickle cell first crises story in the comments section. [more...]
Featured Warrior
Interview with a Medical Doctor with Sickle Cell Disease
Ever wondered if you could be a doctor with sickle cell? Well you can follow that dream. Dr. Y. explains to us how she went through medical school and became a physician. [more...]SC Foundations
SCD Soldier Network
Sickle Cell advocacy and empowerment organization. Join now!
Very Bright Foundation